Owning My Pain

I had goals for today. They were sidetracked by housework which left me in a tremendous amount of pain. Then I discovered our ISP has some speed issues so instead of sitting down and resting or going to the gym to soak in the hot tub, I pushed myself to get things done and be ready for a tech to show up at any moment.

Of course, the tech did not show up until nearly 5pm.

I stood the entire time he was here, nearly 10 minutes, holding back tears the entire time. And then, I forced myself upstairs where I collapsed on the bed and proceeded to fold laundry. Why? Because folding laundry made me forget about the pain – it distracted me from the intense fire in my lower back. That’s how J found me when he arrived home not much after I sat down. He walked through our bedroom door, asked me how I was and all I could do was look at him with absolute pain and tears in my eyes.

He sprang into motion, put a SalonPas patch on my lower back and fixed me a drink. Then he helped me finish laundry, chiding me for twisting and lifting the laundry basket. He tucked me into bed, nudging pillows behind me and making sure I was properly supported. After awhile, (and after some Aleve finally), I fell asleep.

I’m sitting on the couch downstairs now and as long as I don’t move, I’m okay. Tomorrow is a new day and even if I have to crawl into the gym, I’m going to go sit in the hot tub.

I struggle with my emotions on days like today. I am stubborn and tend to push through pain. I do not accept “failure” well. This, this not being able to function as I should, is failure. Intellectually I know it is not but it feels like it. I live with a standard level of pain every day so when that pain level surges and affects me like this, it is incredibly difficult to deal with. I handle depression or mental health issues far better than this sort of thing. I know how to deal with those. I can still move around. But when this happens and I am relegated to bed? Just ugh.

Earlier this evening, as we were folding laundry together, I focused on the fact that we were together. I also focused on the sunset outside. It was gorgeous – a phenomenal combination of oranges, yellows, greys, and pinks which slid into vibrant purples, dark blues, and specks of magenta. Certainly one of the most beautiful sunsets I had seen in awhile and because of this intense pain, I had a front row seat.

It is a fight to focus on the positive instead of the pain so when I manage to do so, it is quite a victory. I talk myself into holding on until the next day, convincing myself I will feel better then which is usually the case…or at least has been thus far. I may need to take it easier than usual but I make it through.

The same holds true today. I just need to make it to bedtime. In the morning, a brand new (and better) day begins. Tomorrow, I will own the pain instead of the pain owning me.

Advertisement

On Walking Through Life as a Postpartum Mood Disorder Survivor

I had a very interesting discussion yesterday as part of an interview with a woman who is putting together a proposal for a book about Perinatal Mood Disorders. Both of us struggled with PP OCD and for the first time, I think we nailed it when we discussed how Postpartum becomes part of your life, even after the initial “crisis” phase passes.

You see, struggling with a Perinatal Mood & Anxiety Disorder affects your entire life. It affects how you function, how you relate to everyone and everything around you, and it ultimately changes your outlook on life. This change, this transformation, at least for me, is directly related to know just how far down I slid when it struck me from out of the blue the first time around.

Diagnosis is one of the first steps toward healing. Diagnosis leads you to help and regaining your footing on the proper path. We all walk different paths and for some of us, our diagnosis becomes our mask. For others, it becomes just one part of us. Or for others, it becomes the very definition of who we are as a person, a mother, and whatever else we are…some become the personification of a PMAD. One of the things we hit on is how women who do not define themselves completely as their diagnosis find it easier to heal because for them, it’s essentially a broken leg instead of a full body cast if that makes sense. It doesn’t take as long to heal just one part vs. the whole thing. Even then, there are always mitigating factors affecting the pace of individual healing.

When you fight back, you develop coping mechanisms to pull yourself through. These look different for everyone and depend on how defined you allow your sense of self to be by the diagnosis of a Perinatal Mood & Anxiety Disorder. It is also important to note that these coping mechanisms may continue to be part of your life for the remainder of your days. It takes 21 days to develop a new habit. Therefore, it makes sense that if you continue something for longer than 21 days, it will become a habit. Whether this habit is healthy or not is up to you and your physician to decide. If it’s minor, no worries. But if it affects your normal day-to-day functioning, it might be time to evaluate things and consider breaking this “habit” as it isn’t healthy.

Do I still carry some of my OCD habits with me from my Postpartum days? Absolutely. But I know they are not a sign that I am still fighting the beast. They are there because they were a part of who I was for a very long time. There are still signals that speak to me and let me know that I am spiraling down the dark path once again, however. My habits tend to increase and begin to interfere with my day to day living when this happens. For instance, I will obsessively brush my hair, stop listening to music, and start looking for things to be upset about if I start to feel overly stressed. Learning to recognize these is a huge leap forward and learning to accept that little quirks you developed with Postpartum are just that, quirks, is also a huge leap forward.

Today was a huge milestone for me. I cleaned and organized the entire first floor of our town house because it needed it, not because I needed to do it. Yes, the clutter was bugging me but not to the point that it made me twitchy. To clean and not “need” to clean felt fantastic. In fact, I’m sitting here, basking more in the accomplishment of having cleaned NOT because of my OCD and because it needed it than in the fact that the downstairs (including the front closet) is completely spotless.

Our habits stay with us after Postpartum because we have immersed ourselves in them for so long as a coping mechanism. Sometimes we have thoughts that carry us back to those dark days and it is important to recognize them as such – just thoughts, not an actual fall back into the dark hole (unless they persist for more than a week or two – then you may want to seek help). Some of us may move on to a deeper, lifelong diagnosis of a daily fight against mental health. But the thing to remember is that you are YOU. You are not your diagnosis, you are not your habits. You are YOU and YOU are amazing, even when it is darkest.

Changing Your Stars

I am watching A Knight’s Tale, one of many movies I could watch several times over. As I start to write, this scene is in the background:

“He’s a real Knight, William. Watch him and learn all that you can. Now go, and change your stars!”

“But father, I’m afraid.”

“Afraid of what?”

“Afraid I won’t be able to find my way home.”

“Don’t be afraid William, you’ll just follow your feet.”

Life is full of changes and situations which evoke fear in our hearts. “Courage is being scared but saddling up anyway,” according to John Wayne. It is knowing not knowing what is around the bend but peeking just beyond despite this unknown, is it not?

For me, that bend was motherhood, and waiting around that bend was one an awful monster I had no desire to meet. But we came face to face anyway, the monster and I, not too long after my first daughter graced my arms. The monster, he breathed heavily in my face, the moisture from his open, drooling mouth specking my face as if it were drizzling. He growled at me as he snatched me, taking me back to his lair just beyond the edge of town.

This monster, he shoved me down a hole in the floor of his shack, a hole so deep there was no light. I crawled into a corner and wailed helplessly until I fell asleep. This monster, he fed me, when he could, but left me there to wallow and ruminate, lost forever from the world, away from my child, my partner, everything. Until one day, a hand reached into the hole and helped me out. The light, it burned. The leaves were greener than I remembered, the dew sparkled on them as the sunlight bounced off the fresh rain collected just on the surfaces of the just born foliage.

The face of my rescuer blurred into many faces for it was not just one person, it was many, working together, which brought me back to the land of the living. One of those faces was my own for I had to fight to accept the help I so desperately needed to escape from the deep dark hole under the monster’s house.

As I left the monsters house, I of course, had to follow my feet home. For me, they led me to a new place in life, some of it familiar, some of it brand new. But alas, it was the home where my heart belonged.

In A Knight’s Tale, as Oreck travels to Cheapside, he encounters a little girl to find out where his father lives. She tells him, and he discovers his father is now blind, unable to see. So he goes up to see him, telling him that he is well without identifying himself, and that he has indeed managed to change his stars. Then there is this exchange:

“Has he followed his feet? Has he found his way home at last?”

“Yes.”

“Oh, Oh William! Oh my boy!”

Then, they sit, they talk, they eat, they laugh as if time has never passed. This is how it should be when a prodigal son returns. A celebration of return to self, or return to an improved self, rather.

Then the story goes dour again as the Adhemar, the knight opposing Oreck (William), exposes him as not being of noble birth. This is much like a relapse, as if the monster had hunted us down again and shoved us back in the hole.

But this time, this time he has people willing to fight with him, beside him, and most importantly, someone willing to truly change his stars. This is what I wish for all of us fighting a Perinatal Mood & Anxiety Disorder – a warrior willing to tilt full speed ahead with a lance against anything and anyone daring to rip us off our horses as we heal. This is what I work to be for all women who contact me – a fighting spirit who will not only go to bat for them but will do whatever I can to instill the same spirit within themselves.

Prince Edward then dubs Oreck, now William Thatcher, as a knight, asking him if he is fit to compete. He is, of course, and he wins against his enemy, the villainous Adhemar.

This is what those of us who fight against a mental illness want – we not only want to win our battles, but we want to be acknowledged as someone who matters. We are human, longing to be counted among those who surround us.

Every day may be a battle, every day may be exhausting, but we get up the next day, and do it all over again, hoping that today, just maybe, we will change our stars a little bit more than the day before, inching ever so much closer to the person we long to be deep inside our hearts.

Go. Change your stars. Don’t be found weighed, measured, and found wanting. Push yourself toward constantly changing your stars for the better. Defeat your monster, make him look up at you from the flat of his back after you have knocked him off his horse.

If you don’t need to change your stars, help someone else change theirs.

To you, it might just be a random act of kindness. To them? It might just change their entire life.

What Would Your Trophy Say?

“It’s psychotic. They keep creating new ways to celebrate mediocrity.”

~Mr. Incredible, The Incredibles~

Ah, good old mediocrity. The goal for which everyone aimed, right?

Not really.

In the sixth grade, I completed in the school’s spelling bee. If memory serves correctly (I’m getting old and yes, there is truth to the old adage that brains stop working as well once you hit a certain age), I won the class competition which is what placed me in the school’s bee.

I won the school’s spelling bee.

Don’t ask me what word I spelled to win because I don’t remember.

I remember, however, thinking winning was kick-ass, especially because I was one of the younger kids in the school. I beat the older, (and I thought smarter), kids that day.

I did not make it past the county spelling bee, however, despite studying my ass off. The other kids there were simply better at spelling than I. (I know, completely shocking, right?)

I have the trophy stashed somewhere, probably in a box long gone, to be honest. Who knows. It is a symbol of victory, of not settling for anything but the best.

I also played soccer as a kid. Our team did not win a lot of games, we definitely did not win regionals or go to any sort of championship. At least, I don’t remember us doing so. Know what we all got at the end of the season? A tropy. For mediocrity.

That trophy, while pretty, is completely worthless. Sure, it has my name on it and is a symbol of a lot of physical exertion over a few months, but meh. There is no victory attached to it therefore it means nothing.

We do not need to reward people for mere participation. For just showing up. Awards are meant for people who go above and beyond expectations, who fight like hell to do their very best and dedicate their lives to be the very best they can be at what they do.

Trophies don’t go to people who half-ass it. At least, they shouldn’t.

I think anyone living with a mental illness who battles through their days just to survive, however, should have a damn trophy. Because that? IS HARD WORK. Getting out of bed, doing what needs to be done, making plans, living – that is damn near impossible for someone with a mental illness. Doable, but damn near impossible without an extreme exertion of energy, both physical and mental.

It is a well-practiced tango between mind and body – convincing the brain to properly control the body to do what it needs to in order to accomplish the most base tasks like eating, showering, cleaning, etc. Same days? It’s more like the hokey pokey – you put the left arm in, you take the left foot out, you do the hokey pokey and you shake it all about. If you’re lucky, you fall asleep and start all over again, praying that your mind & body are back in sync the next day.

If you created a trophy for yourself or someone you loved who struggled with a mental illness to inspire/empower them, what would it say?

Tell me down below!

I’m gonna have to give some thought to what mine would say. Stay tuned for that update!

Meeting Enemies Undaunted

Last night, when I took to my keyboard to write “Finding Life at the End of My Comfort Zone”, I did not need to write it to complete my 500 words for the day. It was just time to admit what had gone on in my life for the past year and how I was coping. After I hit publish, I exhaled. Finally. It was all out. For me, part of healing is being open and transparent.

Not more than a couple of minutes after hitting publish, the post received a comment from someone who has never commented here. It was held in moderation, and I will not be publishing it as a comment. I am, however, going to publish it here, addressing why it is a highly inappropriate response to my post yesterday.

The entire comment is as follows:

Hi! I think that it’s great you’re taking medications to help yourself but I am so sure that you can do so much more awesome things than taking medicine. I am one of those who don’t step outside my comfort zone as well and you know stepping outside the first couple of steps are the hardest but gradually you’ll become stronger to keep pushing yourself forward. You should try meditation it’s not religious at all too. It’s a practice to obtain peace and can really reduce stress. I believe you can do it, you just have to tell yourself that you’re strong enough! I wish you good luck of your journey! :)

You ready to analyze it? I am.

Let’s start with the greeting and the first sentence:

Hi! I think that it’s great you’re taking medications to help yourself but I am so sure that you can do so much more awesome things than taking medicine.

Notice the cheery greeting, complete with exclamation point. She’s HAPPY! She thinks it’s awesome that I’m taking medications to help myself BUT.. wait…. what’s this? She’s sure I can do so much more awesome things than taking medication? Really? Based on what sound evidence? Is she a physician? Has she discovered some amazing new way to deal with situational depression brought on by an insane amount of stress in a short period of time?

*GASPS* Wait – I know! I should have stuck with just my HappyLight, regular rest and relaxation, supplements, and prayed harder, right? Right? *smacks forehead* I totally failed that one, right?

She then goes for the “I relate to you” sentiment with this line:

I am one of those who don’t step outside my comfort zone as well and you know stepping outside the first couple of steps are the hardest but gradually you’ll become stronger to keep pushing yourself forward.

Oh really? Preach on, sister, preach on. That’s how it works, huh? After two episode of PP OCD, an episode of antepartum depression, post-divorce depression, I had NO clue that the first couple of steps were the hardest. I’ve been through the “gradually you’ll become stronger” thing and know that it’s a hard process. I also know that pushing yourself forward is necessary for progress. Of course, these are all things I thought I addressed in my post which, clearly she read because she commented, right?

Perhaps there’s a solution of which she’s aware that I haven’t thought of yet?

There is!

You should try meditation it’s not religious at all too. It’s a practice to obtain peace and can really reduce stress.

Aaaaaaand here’s where it gets fun, people.

Never mind the call I made to a medical professional after fighting on my own for months against the beast inside me, a beast egged on by the stress of living with very negative neighbors who attacked us verbally or intimidated almost every time we stepped outside and wild children who screamed and yelled outside our condo until the wee hours of the morning, interfering with any chance of sleep at night in addition to an insane amount of anxiety through the day.

Never mind the discussion I had with her during which I stuttered, nervously spilling all the details of the hell in which I found myself, fighting back the urge to completely lose it as I did so.

Never mind the years of school and practice my Nurse Practitioner has under her belt which allowed her to have a very compassionate discussion with me about my current state of mind and what my options were to fix it while calming me down at the same time.

We discussed the possibility of therapy but we cannot afford a weekly therapy session right now because we are not insured. But meds which have worked before were an option. So after two weeks of working my way up to making the call, I walked into a pharmacy and picked up a bottle of pills, feeling as if I were less than a toddler’s forgotten cheerio stuck in a couch cushion.

Apparently, what I should have done instead was head over to YouTube and find a meditation video. Boom. All better, right?

An article in Forbes earlier this month touts the benefits of meditation as rivaling that of anti-depressants. The study in the article specifically focuses on “mindfulness meditation” as the preferred form. If it works for you, fabulous. Kudos. I am a huge fan of doing whatever works for you.

Here’s the thing about depression and mental health issues, however: there are a myriad of treatments available because we are not all built alike nor do we all arrive at our diagnosis via the same path. We also do not find our road to wellness along the same path.

Don’t even get me started on the entire religious aspect of this comment. Let’s leave that out of it because we wouldn’t want to offend anyone, would we? (Which is clearly why she specified that meditation is not religious, right?)

Since my brush with Postpartum Mood Disorders, my life is increasingly mindful. In fact, over the past year, I am healthier mentally than at any time in my life. How can I make that claim despite being on anti-depressants now? Mental health does not always mean happy. To me, what it means is a deep understanding of why things happen and accepting what you need to do in order to move beyond them. It means the capability to examine events in your life and hold a healthy response even if it does not lead to joy. The path back to joy, motivation, and yourself is a personal road and no one beside your physician has the right to tell you how to get there. It is YOUR road map, not anyone else’s.

Of course, blogging about my mental health opens me up to criticism and suggestions like this. Some might say that I “deserve” to have comments like this. No one deserves to be told what to do, not even if they’re asking for advice and particularly not if they are opening up about their choices they have already made.

Telling someone that they SHOULD do something other than what they have chosen to do with the help of a medical professional is beyond reprehensible. Making the decision to reach out for help  – to admit you are not okay to a medical professional is an absolutely nerve-wracking experience.

I cannot help that someone who would dare to judge someone else’s road has never traveled down a similar road. Because if they had traveled down this road, they would know how detrimental it can be to be judged for their decisions as they fight to get well.

She wraps up her comment with a much better outlook:

I believe you can do it, you just have to tell yourself that you’re strong enough! I wish you good luck of your journey! :)

Yay. Cheerleading! RAH RAH SISK OOM BAH!

Had she skipped the whole rigamarole about “more awesome than medication” and “try meditation instead” this would have been a perfectly awesome comment. THIS is a perfectly acceptable response to someone admitting they’ve settled on a method of treatment for a mental health issue. It empowers, supports, and encourages without judging the decisions of the person.

So, after all of this – how do you perfectly respond to someone who is struggling and has settled on a method of treatment? It’s hidden in this very comment.

Like this:

“Hi! I believe you can do it, you just have to tell yourself that you’re strong enough! I am one of those who don’t step outside my comfort zone as well and you know stepping outside the first couple of steps are the hardest but gradually you’ll become stronger to keep pushing yourself forward. I wish you good luck of your journey! :)”

Now this is how you support someone!

You support by offering encouragement, compassion, and empowering the person who is fighting like hell to be themselves again.

If someone proffers judgment on your treatment choices, do not let it deter you from your healing. You are in the driver’s seat and decide what exit is yours on this interstate of life, not anyone else, and definitely not a stranger who knows absolutely nothing about why you’re in the car to begin with.

A friend of mine said it best on FB, typos and all:

“Hugs. Love. I Get Its. And no judgement here. Take your meds. Meditate if it helps ON your meds. But fuck everyone else and their well-meaning yet severely judgmental opinions. Just do what’s fight for you.”

That’s what I’m doing – fighting for me, always.