On Walking Through Life as a Postpartum Mood Disorder Survivor

I had a very interesting discussion yesterday as part of an interview with a woman who is putting together a proposal for a book about Perinatal Mood Disorders. Both of us struggled with PP OCD and for the first time, I think we nailed it when we discussed how Postpartum becomes part of your life, even after the initial “crisis” phase passes.

You see, struggling with a Perinatal Mood & Anxiety Disorder affects your entire life. It affects how you function, how you relate to everyone and everything around you, and it ultimately changes your outlook on life. This change, this transformation, at least for me, is directly related to know just how far down I slid when it struck me from out of the blue the first time around.

Diagnosis is one of the first steps toward healing. Diagnosis leads you to help and regaining your footing on the proper path. We all walk different paths and for some of us, our diagnosis becomes our mask. For others, it becomes just one part of us. Or for others, it becomes the very definition of who we are as a person, a mother, and whatever else we are…some become the personification of a PMAD. One of the things we hit on is how women who do not define themselves completely as their diagnosis find it easier to heal because for them, it’s essentially a broken leg instead of a full body cast if that makes sense. It doesn’t take as long to heal just one part vs. the whole thing. Even then, there are always mitigating factors affecting the pace of individual healing.

When you fight back, you develop coping mechanisms to pull yourself through. These look different for everyone and depend on how defined you allow your sense of self to be by the diagnosis of a Perinatal Mood & Anxiety Disorder. It is also important to note that these coping mechanisms may continue to be part of your life for the remainder of your days. It takes 21 days to develop a new habit. Therefore, it makes sense that if you continue something for longer than 21 days, it will become a habit. Whether this habit is healthy or not is up to you and your physician to decide. If it’s minor, no worries. But if it affects your normal day-to-day functioning, it might be time to evaluate things and consider breaking this “habit” as it isn’t healthy.

Do I still carry some of my OCD habits with me from my Postpartum days? Absolutely. But I know they are not a sign that I am still fighting the beast. They are there because they were a part of who I was for a very long time. There are still signals that speak to me and let me know that I am spiraling down the dark path once again, however. My habits tend to increase and begin to interfere with my day to day living when this happens. For instance, I will obsessively brush my hair, stop listening to music, and start looking for things to be upset about if I start to feel overly stressed. Learning to recognize these is a huge leap forward and learning to accept that little quirks you developed with Postpartum are just that, quirks, is also a huge leap forward.

Today was a huge milestone for me. I cleaned and organized the entire first floor of our town house because it needed it, not because I needed to do it. Yes, the clutter was bugging me but not to the point that it made me twitchy. To clean and not “need” to clean felt fantastic. In fact, I’m sitting here, basking more in the accomplishment of having cleaned NOT because of my OCD and because it needed it than in the fact that the downstairs (including the front closet) is completely spotless.

Our habits stay with us after Postpartum because we have immersed ourselves in them for so long as a coping mechanism. Sometimes we have thoughts that carry us back to those dark days and it is important to recognize them as such – just thoughts, not an actual fall back into the dark hole (unless they persist for more than a week or two – then you may want to seek help). Some of us may move on to a deeper, lifelong diagnosis of a daily fight against mental health. But the thing to remember is that you are YOU. You are not your diagnosis, you are not your habits. You are YOU and YOU are amazing, even when it is darkest.

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Meeting Enemies Undaunted

Last night, when I took to my keyboard to write “Finding Life at the End of My Comfort Zone”, I did not need to write it to complete my 500 words for the day. It was just time to admit what had gone on in my life for the past year and how I was coping. After I hit publish, I exhaled. Finally. It was all out. For me, part of healing is being open and transparent.

Not more than a couple of minutes after hitting publish, the post received a comment from someone who has never commented here. It was held in moderation, and I will not be publishing it as a comment. I am, however, going to publish it here, addressing why it is a highly inappropriate response to my post yesterday.

The entire comment is as follows:

Hi! I think that it’s great you’re taking medications to help yourself but I am so sure that you can do so much more awesome things than taking medicine. I am one of those who don’t step outside my comfort zone as well and you know stepping outside the first couple of steps are the hardest but gradually you’ll become stronger to keep pushing yourself forward. You should try meditation it’s not religious at all too. It’s a practice to obtain peace and can really reduce stress. I believe you can do it, you just have to tell yourself that you’re strong enough! I wish you good luck of your journey! :)

You ready to analyze it? I am.

Let’s start with the greeting and the first sentence:

Hi! I think that it’s great you’re taking medications to help yourself but I am so sure that you can do so much more awesome things than taking medicine.

Notice the cheery greeting, complete with exclamation point. She’s HAPPY! She thinks it’s awesome that I’m taking medications to help myself BUT.. wait…. what’s this? She’s sure I can do so much more awesome things than taking medication? Really? Based on what sound evidence? Is she a physician? Has she discovered some amazing new way to deal with situational depression brought on by an insane amount of stress in a short period of time?

*GASPS* Wait – I know! I should have stuck with just my HappyLight, regular rest and relaxation, supplements, and prayed harder, right? Right? *smacks forehead* I totally failed that one, right?

She then goes for the “I relate to you” sentiment with this line:

I am one of those who don’t step outside my comfort zone as well and you know stepping outside the first couple of steps are the hardest but gradually you’ll become stronger to keep pushing yourself forward.

Oh really? Preach on, sister, preach on. That’s how it works, huh? After two episode of PP OCD, an episode of antepartum depression, post-divorce depression, I had NO clue that the first couple of steps were the hardest. I’ve been through the “gradually you’ll become stronger” thing and know that it’s a hard process. I also know that pushing yourself forward is necessary for progress. Of course, these are all things I thought I addressed in my post which, clearly she read because she commented, right?

Perhaps there’s a solution of which she’s aware that I haven’t thought of yet?

There is!

You should try meditation it’s not religious at all too. It’s a practice to obtain peace and can really reduce stress.

Aaaaaaand here’s where it gets fun, people.

Never mind the call I made to a medical professional after fighting on my own for months against the beast inside me, a beast egged on by the stress of living with very negative neighbors who attacked us verbally or intimidated almost every time we stepped outside and wild children who screamed and yelled outside our condo until the wee hours of the morning, interfering with any chance of sleep at night in addition to an insane amount of anxiety through the day.

Never mind the discussion I had with her during which I stuttered, nervously spilling all the details of the hell in which I found myself, fighting back the urge to completely lose it as I did so.

Never mind the years of school and practice my Nurse Practitioner has under her belt which allowed her to have a very compassionate discussion with me about my current state of mind and what my options were to fix it while calming me down at the same time.

We discussed the possibility of therapy but we cannot afford a weekly therapy session right now because we are not insured. But meds which have worked before were an option. So after two weeks of working my way up to making the call, I walked into a pharmacy and picked up a bottle of pills, feeling as if I were less than a toddler’s forgotten cheerio stuck in a couch cushion.

Apparently, what I should have done instead was head over to YouTube and find a meditation video. Boom. All better, right?

An article in Forbes earlier this month touts the benefits of meditation as rivaling that of anti-depressants. The study in the article specifically focuses on “mindfulness meditation” as the preferred form. If it works for you, fabulous. Kudos. I am a huge fan of doing whatever works for you.

Here’s the thing about depression and mental health issues, however: there are a myriad of treatments available because we are not all built alike nor do we all arrive at our diagnosis via the same path. We also do not find our road to wellness along the same path.

Don’t even get me started on the entire religious aspect of this comment. Let’s leave that out of it because we wouldn’t want to offend anyone, would we? (Which is clearly why she specified that meditation is not religious, right?)

Since my brush with Postpartum Mood Disorders, my life is increasingly mindful. In fact, over the past year, I am healthier mentally than at any time in my life. How can I make that claim despite being on anti-depressants now? Mental health does not always mean happy. To me, what it means is a deep understanding of why things happen and accepting what you need to do in order to move beyond them. It means the capability to examine events in your life and hold a healthy response even if it does not lead to joy. The path back to joy, motivation, and yourself is a personal road and no one beside your physician has the right to tell you how to get there. It is YOUR road map, not anyone else’s.

Of course, blogging about my mental health opens me up to criticism and suggestions like this. Some might say that I “deserve” to have comments like this. No one deserves to be told what to do, not even if they’re asking for advice and particularly not if they are opening up about their choices they have already made.

Telling someone that they SHOULD do something other than what they have chosen to do with the help of a medical professional is beyond reprehensible. Making the decision to reach out for help  – to admit you are not okay to a medical professional is an absolutely nerve-wracking experience.

I cannot help that someone who would dare to judge someone else’s road has never traveled down a similar road. Because if they had traveled down this road, they would know how detrimental it can be to be judged for their decisions as they fight to get well.

She wraps up her comment with a much better outlook:

I believe you can do it, you just have to tell yourself that you’re strong enough! I wish you good luck of your journey! :)

Yay. Cheerleading! RAH RAH SISK OOM BAH!

Had she skipped the whole rigamarole about “more awesome than medication” and “try meditation instead” this would have been a perfectly awesome comment. THIS is a perfectly acceptable response to someone admitting they’ve settled on a method of treatment for a mental health issue. It empowers, supports, and encourages without judging the decisions of the person.

So, after all of this – how do you perfectly respond to someone who is struggling and has settled on a method of treatment? It’s hidden in this very comment.

Like this:

“Hi! I believe you can do it, you just have to tell yourself that you’re strong enough! I am one of those who don’t step outside my comfort zone as well and you know stepping outside the first couple of steps are the hardest but gradually you’ll become stronger to keep pushing yourself forward. I wish you good luck of your journey! :)”

Now this is how you support someone!

You support by offering encouragement, compassion, and empowering the person who is fighting like hell to be themselves again.

If someone proffers judgment on your treatment choices, do not let it deter you from your healing. You are in the driver’s seat and decide what exit is yours on this interstate of life, not anyone else, and definitely not a stranger who knows absolutely nothing about why you’re in the car to begin with.

A friend of mine said it best on FB, typos and all:

“Hugs. Love. I Get Its. And no judgement here. Take your meds. Meditate if it helps ON your meds. But fuck everyone else and their well-meaning yet severely judgmental opinions. Just do what’s fight for you.”

That’s what I’m doing – fighting for me, always.

Finding Life at the End of the Comfort Zone

On our refrigerator, there is a simple black square magnet with white words in English sprawled across it. This magnet blends in with our refrigerator, making the words even more noticeable as it rests at the top of the freezer door, right in the center. What are these words?

They say this:

“Life begins at the end of your comfort zone.” ~Neale Donald Walsch~

J purchased it for me on a dreary Sunday last winter during a visit to a local art museum. Of all the colorful things in the gift shop, the simplest thing, devoid of any true colour, caught my eye.

Why?

Because the words spoke to me. They challenged me to push myself further than I was comfortable. For the first time in weeks, I felt hope. When we bought the magnet, it was not too long after Sandy roared through our area, leaving me more traumatized than I wanted to admit.

Over the past year, I have pushed myself past my comfort zone. I auditioned in NYC for Listen to Your Mother (and am auditioning again this year, only for Northern New Jersey), I joined an in-person mom’s group, and I am back to pushing myself again after a setback with former neighbors which left me afraid to set foot outside by myself, even after we moved.

Within the past month, I started going back to the gym, I’ve ventured to various places by myself, and I plan to start walking around the neighborhood once it’s not covered under a ton of snow and the temperature won’t turn me into an instant popsicle. Oh, and I am learning how to drive in the snow. Slowly. Don’t laugh, most of my driving years were spent in the deep south where it does not snow often. Yes, I am a Jersey girl and perfectly capable of tolerating the cold but that doesn’t mean I know how to drive in the snow. It’s not that difficult to do, I’m realizing.

I owe this diving out of myself to the courage in asking for help.

I made a phone call back in December to our nurse practitioner to follow up with her about the situation with the neighbors. I saw her back in August due to extreme anxiety because of the situation – anxiety which left me afraid to open the blinds, turn on lights, or do anything beyond sit on the couch and watch TV for nearly 5 days straight. My sleep even suffered and my appetite vanished. I refused to leave the condo, in fact, unless J was with me. I needed help. In August, she prescribed something for anxiety. It worked and got me through the remainder of our time there as well as through our move.

But my prescription ran out.

We were happier at our new place. It was quiet, no screaming children at 11pm, no neighbors calling us names, no trapped in a dark condo. Instead, there was peace, quiet, and a lot of sunshine as all the blinds were opened and the light poured in from every possibly window. I still found myself triggered by certain situations and sounds despite the new tranquil environment. Shell-shocked from the former residence.

Then J was suddenly let go from his job and we faced losing our brand new place. With some careful maneuvering and help from family and a few wonderful friends, as well as some well-timed freelance work,  we managed to hang on. He found a job, and has been working steadily. I am still trying to  get freelance work going but haven’t lost hope.

While he was unemployed, I was the rock. I did not panic, I held fast and trusted that he would get a job. Once he did, I unraveled – fast. I was wildly unprepared for the roller coaster exit.

J sat me down one night and quietly shared his observances – that he was worried about me, I wasn’t myself. He suggested I call our NP. I struggled with the suggestion. I made it so far without medication. So far. Through a divorce, through the struggle of job-hunting and never hearing anything back, then through Sandy. All of this by myself. I was not sure I wanted to take a pill to get by again. I couldn’t. Could I?

Finally, after realizing every possible option but taking medication had been explored yet I  was still struggling, I made that call in December. We talked about SAD (Seasonal Affective Disorder), situational issues, and what medications had worked for me before. I talked quickly, fighting the urge to just hang up. She was wonderful and very non-threatening, telling me that she would call in the script and I could pick it up if I chose to but did not need to feel beholden to it.

I picked it up the next day.

It has been almost 6 weeks and I have picked up a refill.

The medication is helping quite a bit. I am focusing, I am laughing, and I feel more like me.

Going back on a medication felt like defeat. It felt as if I was calling it in, giving up. But I know that I tried everything I possibly could before making that call. Making that call? WAY outside my comfort zone. It is the most uncomfortable thing possible to call your doctor to tell him/her that you are not emotionally stable. Yet, if it were a broken bone, I would have rushed to the ER. Stigma is a pervasive bastard – I hate it.

Every morning now, I swallow hope, in the form of a small white pill.

One day, perhaps I will get to a point where I will simply hold hope in my heart and mind, not in my stomach or blood stream.

But for now, that is where my hope lies, intermingling with my stomach acid and my blood cells flowing through my veins.

I’m okay with that because I know it is without a doubt, what I need to be the best me I can be right now.

Saturday Sundries: When Suicide becomes reality

Morning y’all.

I hope you have imbibed at least one cup of coffee because today I am going to get serious. Life and death serious.

Over the course of my time as a peer advocate/support person for women and families struggling with Postpartum Mood Disorders, I have faced suicidal mothers more than once. Each time it is draining. The first time I faced this issue I’ll be honest – I didn’t know what to do. The first time I faced it on Twitter, I recruited people to support me via DM, reached out to emergency contacts, and the mom connected with someone via phone. It wasn’t me but that did not matter. What mattered was that she reached out and held on to hope. She got help and is still here.

Over time I have grown more comfortable at dealing with someone in a suicidal crisis. Each time it still drains me though. But it’s part of what I do. I am very careful to ensure care for myself during and after an intense time of support. I watch a lot of comedy, exercise, and talk with others honestly and openly. I love that my support asks how I am doing if I’ve clearly gone through supporting someone.

I have had to learn how to help others. I have also learned how to help others deal with very real tragedies resulting from the often invisible illness that is a Perinatal Mood & Anxiety Disorder. Right now, our community, those who suffer from, have survived, and fight for those who are struggling, is coming to grips with the events which led to the death of Miriam Carey. There’s a wonderful article over at USA Today dealing with the situation. The article covers PMAD’s respectfully and take the time to differentiate the various types of disorders. If you read any article about what happened, make it this one.

Do you know facts and statistics about suicide? Would you know what to do if someone you loved or knew admitted to active suicidal feelings? Would you be able to recognize the signs of potential suicide? It’s important to be able to do so… think of it as basic first aid for the mind. Just as our bodies can hurt, our minds hurt too. And sometimes? Sometimes we’re not capable of recognizing the extent of the injury until it’s too late.

You are not at all helpless when it comes to suicide. You CAN do something. Start with this list over at the National Suicide Prevention Lifeline. Know how to report suicidal behaviour on Facebook. Program the National Suicide Prevention Lifeline number -1-800-273-8255- in your phone.

Start a discussion about suicide with friends. If someone jokes about it, correct them by saying that it is a serious matter and deserves serious attention, following that statement up with facts and statistics. It is absolutely not something one should ever joke about. Ever.

Despite all this, sometimes we lose people. Even if we know all the signs and know exactly what to do. We can’t put our plans into motion if we do not know the plans and thoughts of those around us. It hurts like hell to lose someone to suicide. It is a pain I know well. It is a pain others I know also know well. We can do everything right and still have suicide implode our lives. How do we cope then?

When we have lost someone to suicide, we are then termed as “survivors of suicide.” People who have survived someone who completed suicide. You are not alone in this, not at all. There are others out there who are going through the anger, the frustration, the sadness, the regret, the what if’s… the entire gamut of emotions one goes through after losing a loved one to suicide. There are a few online resources. The first one is at Suicidology on their Suicide Survivors page. Then there is Alliance of Hope for Suicide Survivors.

There are also friends and family. Some of them may not understand your grief. They may not understand the length of it or the manner in which you choose to grieve. But grief is different for all of us, just as life is different for all of us. Grieve in the manner which feels best to you and don’t worry about what anyone else thinks. Let it out, let it flow through you, and process your emotions in the best possible way for YOU.

Bottom line – suicide is not something we need to remain silent about. It’s not something we should continue shoving in a corner and pretending it doesn’t happen. It happens, to everyone in all walks of life. We ALL are affected by suicide.

Let’s get together and talk about it – open up, let people know they are loved, they matter, and we do care. Today, take the time to smile at a stranger. Say hello and ask how they are and mean it – stick around for the answer, don’t drift off into the crowd. Offer to help someone with something. Do a good deed. You may just be the one thing they’ve been needing to brighten their ever so darkened life.

After that good deed? Start a conversation somewhere about how important it is to discuss suicide and the issues that can cause it but also what to do when the mere thought of it is looming on the horizon. You may just save a life doing both. And that, my friends, is why we all matter.

Thoughts on Miriam in DC

On October 3, 2013, Miriam Carey tragically lost her life Washington, DC. She was supposed to be in Connecticut, taking her daughter to a doctor’s appointment according to the myriad of articles I have read this morning.

They all seem to have the similar tone to them, these articles. That a woman tragically lost her life because she had Postpartum Depression.

Yet, medication recovered at her Stamford, CT, apartment would indicate that what was going on with Miriam went much deeper than Postpartum Depression.

A woman with Postpartum Depression does not simply break with reality and drive hundreds of miles out of her way to drive into barriers, lead police on a chase, and somehow end up dead, all with her infant daughter in the back seat.

The behaviour of Miriam Carey lends itself to the behaviour of a mother struggling with Postpartum Psychosis, the facts of which can be found at this page on Postpartum Support International’s site. According to this page, symptoms of Postpartum Psychosis can include:

• Delusions or strange beliefs
• Hallucinations (seeing or hearing things that aren’t there)
• Feeling very irritated
• Hyperactivity
• Decreased need for or inability to sleep
• Paranoia and suspiciousness
• Rapid mood swings
• Difficulty communicating at times

There are a number of symptoms on that list I have seen discussed this morning. Some of them match up with PPP.

The other things I have seen discussed this morning are heartbreaking. Folks judging Miriam for her actions. Saying she’s a monster. Wondering how she could possibly have driven her vehicle into the barriers and toward a hail of police bullets with her daughter in the back seat.

I have also seen some honest discussion about what it means to struggle with a mood disorder after the birth of a child and how it hurts whenever something like this happens. I feel as if I have been punched in the gut, to be honest. I want to fall to my knees and weep for what happened to Miriam. But instead, I am writing and I am reaching out to those in the community I founded to support women and families struggling with mood disorders after the birth of a child.

Why?

Because this kind of support, on a human level, helps quell the storm. It lets others know they are not alone and there is hope. We help each other find the way in the dark, particularly when a storm like this tragedy looms on our shores. You see, at one time or another, we have all been Miriam. We have had those thoughts, the scary ones about driving our cars into solid objects, about letting go, about just giving up and moving on toward that great white light. Some of us have almost touched that white light. WE KNOW the darkness which drove Miriam to Washington, D.C. intimately. We have sat with it on our shoulders, in our hearts, and felt it try to gain control of our heads. We, however, are the lucky ones because we are still here, fighting.

When the women of the Postpartum Support Community band together, it is a beautiful thing. We are some of the strongest women in the world and we refuse to stand down. In the spirit of standing strong, I will be participating in a Blog Carnival “For Miriam” on World Mental Health Day on October 10th. If you would like to join us, you can find more information here on the FB page.

For now, know that you are not alone, it is absolutely okay to reach out for help, and you are loved.

If you or a loved one are currently struggling with a Perinatal Mood & Anxiety Disorder, reach out to Postpartum Support International at their website or find me on Twitter @unxpctdblessing. There is also 24/7 support available via the hashtag #PPDChat and we have a closed FB group as well. You are never alone.